Birt-Hogg-Dubé Family Alliance

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Our content has moved to our new website.  Please visit www.BHDSyndrome.org

www.BHDSyndrome.org contains additional, and updated, information about the Birt-Hogg-Dubé Syndrome, research and important events.

 
The Second Birt-Hogg-Dubé Symposium will be held in Washington, DC on April 22, 2010. We hope to see as many BHD families and patients as possible. We have planned a full day for all family attendees. The day will include joint sessions with all other attendees, as well as some break out sessions just for families.

The cost of the day will be $50 for family members; we are subsidizing the cost of registration.

Our program includes presentations from Dr. Laura Schmidt, Dr. Berton Zbar, Lindsay Middelton ,Joyce Graff, and Dr. Frank McCormack. We will have opportunities to hear some clinical abstracts, and to participate in roundtable sessions.
 
The program is as follows:
 
Introduction          Dr. Laura Schmidt               
                             all will attend
Featured speaker   Dr.  Berton Zbar                 
                              all will attend
Break out session   Joyce Graff, VHL Alliance    
                              families
Featured speaker    Frank Mc Cormack             
                              all will attend
Coffee break
Featured speaker    Lindsay Middelton              
                              families
Lunch
Invited speaker       Joyce Graff, VHL Alliance    
                              all will attend
Clinical abstracts                                              
                              all will attend
Coffee
Break out session                                            
                              families
 
There are hotel rooms available through the Birt Hogg Dube syndrome website. We can assist in finding alternative accommodations.
Please see www.BHDSyndrome.org <http://www.bhdsyndrome.org/conference/ <http://www.bhdsyndrome.org/conference/> >  for additional details.

See our "About Us' page for a list of topics that are covered on www.BHDSyndrome.org.
 
For more information on "Other hereditary Kidney Cancer Symptoms", please see www.BHDSyndrome.org.


FibrofolliculomasonNeck.jpg

Many people with BHD have skin manifestestations. This photo shows fibrofolliculomas on the neck. You can see many more photos of skin symptoms here.

This site provides information for those affected by or interested in BHD. Always see medical professionals for all issues regarding your health care.

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