Birt-Hogg-Dubé Family Alliance

About Us
Home
About Us
Contact Us
Upcoming Events
Links
BHD Worldwide

We are pleased to announce that we have partnered with the Myrovlytis Trust to provide families and researchers with information about BHD:
 
www.BHDSyndrome.org is the first online point of reference for anyone interested in BHD syndrome.  You'll find descriptions of the physical symptoms associated with BHD and current treatments. There is information about the gene test for this syndrome, as well as things to consider before getting a gene test. We discuss insurance issues, and provide you with practical information you can share with your family. You'll be able to read personal stories.
 
We welcome your questions and suggestions. Please contact info@birthoggdube.org.  


BHDlogo.jpg


Here are some of the topics you'll find on www.BHDSyndrome.org:

 
 

 
 
 
 
 
 
 
 
 
 
 
 
 
 
  
 
 
 
 
 
 
 
 

This site provides information for those affected by or interested in BHD. Always see medical professionals for all issues regarding your health care.

This site  The Web

Website hosting by Web.com