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We are pleased to announce that we have partnered with Myrovlytis Trust to provide families and researchers with
information about BHD. Myrovlytis Trust funds research on BHD.
www.bhdsyndrome.org
We welcome you to visit our new site, www.bhdsyndrome.org,
the first online point of reference for anyone interested in BHD syndrome. You'll find descriptions of the physical symptoms
associated with BHD and current treatments. There is information about the gene test for this syndrome, as well as things
to consider before getting a gene test. We discuss insurance issues, and provide you with practical information you can share
with your family. You'll be able to read personal stories. We welcome your questions
and suggestions. Please contact info@birthoggdube.org.
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